Experiences of cognitive stimulation therapy (CST) in Brazil: a qualitative study of people with dementia and their caregivers

Renata Naylor (1) , Aimee Spector (2) , Emily Fisher (2) , Fernanda Fucci (1) , Elodie Bertrand (3, 4) , Valeska Marinho (5) , Iris Bomilcar (5) , Bruna Coutinho (1) , Jerson Laks (5) , Daniel C Mograbi (1, 6)

1 PUC-Rio - Pontifícia Universidade Católica do Rio de Janeiro [Brasil] = Pontifical Catholic University of Rio de Janeiro [Brazil] = Université catholique pontificale de Rio de Janeiro [Brésil]
2 UCL - University College of London [London]
3 LMC2 (URP_7536) - Laboratoire Mémoire, Cerveau et Cognition
4 UFR Psychologie UPCité - UFR Institut de psychologie [Sociétés et Humanités] - Université Paris Cité
5 UFRJ - Universidade Federal do Rio de Janeiro [Brasil] = Federal University of Rio de Janeiro [Brazil] = Université fédérale de Rio de Janeiro [Brésil]
6 Institute of Psychiatry, Psychology & Neuroscience, King's College London

Objectives: There is a lack of investment in psychosocial treatments for people with dementia in Brazil. Cognitive Stimulation Therapy (CST) is a group-based intervention that has shown to have benefits on activities of daily living and mood for people with dementia in Brazil. This study aims to explore the experiences and perceived changes following CST groups. Methods: Individual interviews were conducted with the participants of the group (n = 12) and their caregivers (n = 11). Framework analysis was used to inspect the data. Results: Two main themes have emerged: 'Personal benefits of being part of the group' , containing two subthemes: 'Benefits for caregivers' and 'Benefits for person with dementia' and 'Day-today changes' , containing seven subthemes; 'Memory' , Sociability' , 'Language' , 'Mood' , 'Orientation' , 'Everyday activities' and 'Behavioural and psychological symptoms'. Conclusion: Results suggest that CST groups led to perceived personal benefits for the people with dementia and caregivers and that there are perceived changes for the participants of the groups.

Mots clés: Dementia; Cognitive stimulation therapy; Qualitative analysis; Framework analysis

Domaines: Psychologie

Renata Naylor, Aimee Spector, Emily Fisher, Fernanda Fucci, Elodie Bertrand, et al.. Experiences of cognitive stimulation therapy (CST) in Brazil: a qualitative study of people with dementia and their caregivers. Aging and Mental Health, 2023, pp.1-6. ⟨10.1080/13607863.2023.2231376⟩. ⟨hal-04163625⟩