Development and acceptability of a brief, evidence-based Dementia Awareness for Caregivers course in low- and middle-income countries - Archive ouverte HAL Access content directly
Journal Articles Dementia Year : 2022

Development and acceptability of a brief, evidence-based Dementia Awareness for Caregivers course in low- and middle-income countries

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Charlotte Stoner
  • Function : Author
Monisha Lakshminarayanan
  • Function : Author
Daniel Mograbi
  • Function : Author
Sridhar Vaitheswaran
Paula Schimidt Brum
  • Function : Author
Helen Durgante
  • Function : Author
Cleusa Ferri
  • Function : Author
Sarah Mkenda
  • Function : Author
Richard Walker
  • Function : Author
Catherine Dotchin
  • Function : Author
Stella-Maria Paddick
  • Function : Author
Mina Chandra
  • Function : Author
Murali Krishna
  • Function : Author
Bharath Du
  • Function : Author
Kunnukattil Shaji
  • Function : Author
Emily Fisher
Aimee Spector

Abstract

Background Knowledge of and attitudes towards dementia vary across countries, and for caregivers in low- and middle-income countries (LMICs), access to information can be challenging. There is an urgent need for brief, easily accessible and culturally appropriate educational courses for caregivers of persons with dementia, providing much needed information whilst addressing important psychological concepts such as stigma. Methods An international and multidisciplinary team developed Dementia Awareness for Caregivers (DAC) courses in four stages: (1) scoping review and module agreement, (2) development of an International template (DAC-International) containing a standardised process for adding information, (3) development of local DACs using a standardised format and (4) acceptability of courses in Brazil, India and Tanzania. Findings The DAC-International was developed, comprising three modules: ‘What is dementia?’; ‘Positive engagement’ and ‘Caring for someone with dementia’. Three local versions were developed from this (DAC-Brazil, DAC-India and DAC-Tanzania), where additions of country-specific information included prevalent stereotypes and the addition of culturally relevant case studies. An initial field test was conducted in each country ( n = 85), which indicated acceptability to participants. Conclusions The methods used here resulted in culturally valid and acceptable educational courses for carers of people with dementia. Future work will consist of large-scale, formal evaluations and the development of additional local courses.

Dates and versions

hal-03735424 , version 1 (21-07-2022)

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Charlotte Stoner, Monisha Lakshminarayanan, Daniel Mograbi, Sridhar Vaitheswaran, Elodie Bertrand, et al.. Development and acceptability of a brief, evidence-based Dementia Awareness for Caregivers course in low- and middle-income countries. Dementia, 2022, 21 (2), pp.598-617. ⟨10.1177/14713012211055316⟩. ⟨hal-03735424⟩

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